Marfan Syndrome & Related Disorders Conference & Adolescent Transition Workshop

at The Royal Melbourne Hospital Function & Convention Centre Saturday, 14 March 2015 from 8:30 AM to 5:15 PM (AUS Eastern Daylight Time) + Add to calendar14/03/2015 08:3014/03/2015 17:15Australia/SydneyMarfan Syndrome & Related Disorders Conference & Adolescent Transition WorkshopMarfan Syndrome & Related Disorders Conference & Adolescent Transition Workshop Saturday, 14 March 2015 from 8:30 AM to 5:15 PM (AUS Eastern Daylight Time) Organiser Liz Small 0410563222 lizs@theschaefergroup.com.au Address The Royal Melbourne Hospital Function & Convention Centre Grattan Street Parkville VIC 3050 Australia Getting There Driving: Undercover car parking is available at The RMH City Campus, entering off Royal Parade, alternatively street parking is available. Public Transport: Tram route 55 & 59 stop 14 or Tram route 19 stop 10 Event web page: https://www.stickytickets.com.au/23381The Royal Melbourne Hospital Function & Convention Centre
Grattan Street
Parkville VIC 3050
AustraliaLiz SmallfalseDD/MM/YYYY2880

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Event Details

INAUGURAL MARFAN SYNDROME & RELATED DISORDERS CONFERENCE & ADOLESCENT TRANSITION WORKSHOP

Patient Information Day - Hear from a world-class team of medical professionals from Cardiologists and Geneticists to Orthopaedists and Ophthalmologists, all currently at the forefront of Marfan syndrome research.

KEYNOTE SPEAKER - Reed E Pyeritz, MD, PhD.

  • William Smilow Professor of Medicine and Genetics
  • Division of Translational Medicine and Human Genetics
  • University of Pennsylvania School of Medicine, Philadelphia, Pennsylvania USA

CONFERENCE Professor Ingrid Winship, MBChB, MD, FRACP, FACD.

  • Executive Director of Research, Melbourne Health
  • Professor of Acute Clinical Genetics University of Melbourne
  • The Royal Melbourne Hospital, Parkville, Victoria AUS


 Conference Agenda – Saturday 14th March 2015
8.30 Attendee Registration
9.00 Welcome & Conference Chair - Prof. Ingrid Winship
9.15 Keynote - Dr Reed E.Pyeritz
10.15 Topic: Genetic Counselling and Marfan Syndrome
Dr Ivan Macciocca
10.40 Morning Tea
11.00 Topic: The Cardiovascular System in Marfan Syndrome and Related Disorders Prof.Malcolm West
11.45 Topic: Marfan Syndrome and Related Disorders -A Humble Clinician’s Understanding of Family Concerns from Infancy to Adolescence
Dr Lesley Ades
12.25 Lunch
13.30 Topic: Marfan's Syndrome and the Eye: The Things You Need To Know About
Dr Mei Hong Tan
14.15 Topic: Marfan Syndrome Orthopaedic Considerations
Prof. Ravi Savarirayan
15.00 Topic: Physical Activity for Individuals with Connective Tissues Disorders
Verity Pacey
15.20 Afternoon Tea
15.50 Topic: Marfans Syndrome “Beginning at the Feet” – A Whole Body Health Approach
Kristi Boles
16.10 Topic: The Impact of Marfan Syndrome on Dental Health
Prof. Malcolm West
16.30 Topic: Pain Management in Marfan's Syndrome and Other Connective Tissue Disorders
Dr Kevin Young
17.00 Conference Close

Adolescent Workshop Agenda – Saturday 14th March 2015
8.30 Attendee Registration
9.00 Workshop – Session 1
10.40 Morning Tea
11.00 Workshop – Session 2
12.25 Workshop Close

ADOLESCENT TRANSITION WORKSHOP

ConnecTeD Foundation’s adolescent transition program is designed to support adolescents and young adults between the ages of 13 – 19, in the move from child-centred health to adult oriented health care. Our program provides an overview of what to expect as a child with a chronic illness moving into adulthood and the changes that occur, including:

  • ·Finding your adult voice, your rights and responsibilities
  • ·The continued role of family and friends
  • ·Maintaining support networks
  • ·Emotional well-being and other body changes
  • ·Keeping and maintaining your own health file
  • ·Managing specialist appointments
  • ·Support groups and what they can offer

Our transition program will be run by:

  • ·Renee Veliscek-Plisek (ConnecTeD Foundation Board member, Allied Health Professional and person affected by CTDs)
  • ·Adam Heaney (ConnecTeD Foundation President, Allied Health Professional and father of person affected by CTDs)

We limit our sessions to 20 participants so be quick to join us for the Inaugural Marfans Syndrome & Related Disorders Conference in Melbourne 2015!

Support the Marfan Organisation by purchasing a T Shirt. $19.95 for Members, $29.95 for Non-Members


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Location
The Royal Melbourne Hospital Function & Convention Centre

Grattan Street Parkville VIC 3050, Australia

Organiser Information

Liz Small
Marfan Association Victoria
0410563222

Ask the organiser