FOP Australia

FOP Australia is a new organisation seeking to raise awareness of and much needed funds toward finding a cure for Fibrodysplasia Ossificans Progressiva (FOP) one of the rarestgenetic conditions known to medicine. FOP affects approximately 800 people around the world, 19 people in Australia and 2 in New Zealand live with FOP.

Our vision and mission is to:

• help educate communities, in particular medical professionals, on the symptoms and medical management of FOP;
• support all patients and families living with FOP in Australia and more widely in the Asia Pacific region;
• raise funds for medical research both in Australia and overseas through established and world renowned FOP research centres; and
• advocate at community and government level to ensure any future approved treatments be made available to patients in Australia.